We brought Baby C to HUKM to see the nephrologist today. An ultrasound scan was also performed on her kidneys. The right kidney is still moderately dilated and the left kidney is fine. She has a grade 3 Kidney Reflux, thus the reason the right kidney is dilated. The nephrologist said that if she has a breakthrough UTI (which means that a UTI would still occur despite being on antibiotics), she would refer Baby C to the pediatric surgeon for the surgeon to assess her case.  If the grade of KR continues to go up, she may have to undergo either a surgery to correct the urinary system  or the dr. would have to inject something into her bladder wall (I did not ask what procedure this is called as I had asked the dr. too many questions today) to prevent a reflux.
The goal now is to prevent another UTI and I can only pray hard that the UTI will be kept at bay coz recurring UTIs will scar the kidney. The dr. recommended that Baby C’s urine be tested once in every 3 months but hubby and I feel that it’s best that we have her urine tested every month. We feel it’s necessary so that at the onset of bacteria present in the urine, she can be treated immediately.
Meanwhile, the best I can do for Baby C is to breastfeed her for as long as I can. The dr. said that breastmilk is the best protection for her, on top of her daily antibiotics. Hopefully as she grows, the KR will also become less intense and hopefully, it can even resolve spontaneously.
I woke up at 5:30am today to collect Baby C’s urine. Took me 3 hours and 3 urine bags to collect 2 bottles of pee. The funny thing is that on days when I don’t need to collect her pee, she always gives me a wee wee fountain but on days when I need to collect her pee, she just won’t wee.
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hope she will get better each day
Praying now for getting well.
I was even more paranoid that I opt for urine tests done every fortnight for the first 3 months. I pray baby C gets well soon.
I feel your pain. I will keep on praying for bb c….god bless…..
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Hope she will get better soon
oh dear…i agree with u, once a month better than 3 months once. hope she gets better
Hope the KR will resolve by itself n not require any surgery or procedure.
Hi 🙂 I just found your blog through Blog Rush. Anyway, our youngest daughter also has kidney troubles. She doesn’t have reflux, but has an extra piece of kidney growth on one kidney. It functions as its own kidney, but drains super slow. We’ve only experienced one UTI in her one year of life, but boy was that ever awful! Our specialist actually told us to only get urine samples with a catheter, as the bags do not get a clean enough sample. I just hope your little one will not get recurring UTI’s. How awful.
I too had the same prob with Abilash when I had to collect his urine!